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I have a family member that was healthy 9 months ago before seeing a doctor for dizziness. This was his first doctors visit in over 10 years. He never takes any form of medicine whether prescribe or otc. After finally convincing himself to go get checked up he was prescribed DIOVAN for high blood pressure. He pleaded with the doctor that this could not be the case because he new he didnt have HBP. At the time he was having a severe sinus infection. That visit is vital was 145/90. So being persuaded he takes the medicine for the course of a month. Meanwhile he starts swelling up to the point of not being able to put on his boots for work. He goes back to the doctor and says he stopping the med. The doctor tells him its not the med and he has to tapper himself off of it. A week goes by and he has severe pains throughout his joints and muscles. HE stops the meds on his own. Goes back to the doctor and they say he was bitten by something. Run test. Nothing indicating he was. He now has symptoms of bee stinging throughout. Still swelling. Not able to hardly walk. Sever pains. Back to the doctor. Tell him he maybe going into kidney failure due to the fluid. Dont want him to take anything for swelling and fluid cause it may alter the weeks of blood work he has to take. All visits his blood pressure registers normal. Takes MRI -no kidney problems. Tell him possibly congestive heart failure. More test...Nothing....Sees skin docotor for allergies...Skin is looking odd and crazy now. Hes starting to have sores...THe skin test come back as him having some type of allergic reaction to something. Doctors wont say if its eh Diovan. He gets sent to Oshners in New Orleans. Meanwhile he stops swellling. Now its opposite. His skin starts gettiing tight. Doctors say maybe an immunity disease. They cant find anything wrong. More blood work test etc...They tell him they will pound this out at Oshners. Meanwhile he cant even put his arms straight anymore. Has bands in skin that are like tighten cords that u can see. Pain still there. They give him Predisone for the skin problems. Helps somewhat to become bearable. Finally last week they say they think its morphea scleroderma.Its a rare disease thats caused by a chemical reaction in the body. The damage cannot be reversed. Only symptoms can be treated. Today hes on the sofa in pain. Healthy man not able to work hardly, or fish, or hunt. IS THER ANYONE THAT CAN GIVE ME A LEAD ON WHAT OUR FAMILY CAN DO? Can there be a way to prove its the medicine that did it. We know it was. The doctors refuse to talk about it or say they cannot say a yes or no. At this rate we r not sure what will happen next? Anyone we can talk to about this? Any advice or help will be greatly appreciated! There still running test over and over. ITs taking up to 4 weeks now bt visits. In the meantime hes getting worse. Anyone heard of this rare disease before?
Thanks in advance.
Thanks in advance.
Replies to This Discussion
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Permalink Reply by Jessica on -
Ryan - I agree with Holly here - get the medical records asap before they 'get lost'. See a disability lawyer and they will get you to a physician that doesn't have a closed mind towards the possibility of the medicine causing his problem.
A dr. put me on a hormone years ago that made my BP spike. I went in and it was so high they put me to bed and gave me meds and kept me there for hours. Later when I stated I thought it was a reaction the doctor said no it could not be. He put me on HP meds instead. I took myself off the hormones and my BP went back to normal. I changed doctors! Good luck with your family member - that is a terrible thing that has happened. I would try to get him to a ND or someone like Dr. Young. I'll be praying for him.
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Permalink Reply by RachelA on -
I don't know if the Diovan and "sting" and subsequent symptoms are related-got me on that one. Many of the symptoms "potentially" sound like Lyme Disease to me. I might be partial to saying this, but it's worth looking into pronto. If you do, you need to find a LLMD (Lyme Literate Medical Doctor). A regular doctor knows NOTHING about this. Trust me. I am NOT saying it's LD, I'm just saying it's a possibility to look into with these symptoms.
Dr. Mercola has a great article (2 part article) that you might want to read:
http://articles.mercola.com/sites/articles/archive/2001/07/25/lyme-...
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Permalink Reply by Ry Ry on -
Thanks. I will check to see if he had test done for this. I know they did everything possible but hey, you never know what could have slipped through the cracks.
Thanks again.
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Permalink Reply by RachelA on
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Just a note-only about 1/3 of people that have it will ever test positive (by blood) as it's not a disease/spirochete that lives in the blood like other diseases. It lives in tissue, muscle, cartilage, brain matter, etc. Best of luck to you!!! I encourage you to read that Mercola article.
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Permalink Reply by Ry Ry on
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Thank you Holly, Jessica, and Rachel. YOur each a blessing in time of need. We do have all the records. I will pass this information along a.s.a.p. Its a real scary situation for us all. Thanks to each of you.
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Permalink Reply by Jon on -
I don't know the best, most "sugar coated" way to say this, but try to encourage him to NOT believe that the damage cannot be reversed. What a person believes can have a TREMENDOUS effect on how they heal. Most of us on here know that traditional medical doctors mostly know how to do 2 things: Prescribe drugs and remove body parts. I know this isn't true for all, but it seems to me that there are a LOT of them that do practice that way......
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Permalink Reply by Ry Ry on
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Hes has had several repeated test for lyme disease. Doctors say hes not infected with it. Has anyone heard of morphea scleredoma before?
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Permalink Reply by RachelA on
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I'm glad to hear that. Just tell him to keep in mind not to COMPLETELY cross it off the list of "possibilities". 40-60%, aprox 2/3 of people afflicted NEVER test positive with a blood test. The gov/CDC's rules of "you don't have it if you don't test positive" are FALSE! ANY LLMD will tell you that. I just want to see your friend get better and want to give you the FACTS on what area I do know a lot about. Best of luck and it's great what you're doing to help!!
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Permalink Reply by Ry Ry on
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its my fathter in law....he has another visit thursday so we will check into this again....thanks
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Permalink Reply by KnowNow on -
Oh boy I often wonder why do we even listen to the doctors and then once they have poisoned and almost killed us we go back again for the cure.
It sounds like he needs to do a kidney cleanse (drink fresh limes on an empty stomach, and drink fresh organic parsley tea and fresh organic cranberry tea)
To help stop the itching can try the following:
Take dolomite
Take bonemeal
Take vitamin D
Biotin
Complete BComplex
Do a candida cleanse
Drink a cup of thyme tea each morning to help decrease water retention, can also add voilet and rosemary herbs to it.
Stop all table salt and switch to sea salt. For every quart of water add a 1/4 teaspoon of sea salt or himalyan(sp) salt only use natural salts.
Clean the blood
Take cayenne pepper pills, to help with circulation
Eat dark green leafy vegetables or take vitamin K and iron.
For Pain:
1. Take MSM powder, or can mix it with white willow bark.
2. apply MSM lotion with arnica and clove oil added
If it is an underlying infection he can also try:
1. Oregano capsules
2. Olive leaf capsules
3. Collodial silver (make sure to take selenium to help the body eliminate properly and he might should hold off until his swelling goes down)
Eat a banana or take potassium pills (but due to swelling should hold off until body functioning properly, potassium is hard on the kidneys)
Change the diet, no refined sugar and eat a wholesome organic diet whenever possible.
If he also thinks he is being invaded by quitters or perhaps they were disturbed by the doctors meds, he could also do a parasite cleanse and he could try MMS (miraclemineral.org)
Also never believe anything a doctor tells you. They want a person to stay sick and put that brainwashing in the mind. He must believe and know he will get better and he will be led to find the way to help himself.
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